Hi.

This isn't a how-to. I'm not a pinterest mom. I'm a firm believer in faking it 'til you make it. This is for all the millennials out there who secretly have no idea what they're doing. I'm looking at you, millennial caregivers. 

One Year Anniversary

It's our one year wedding anniversary today! It's amazing how much change a year can bring. At the same time, the year flew by. Each day I love S more than the day before. He is so supportive and incredible. He truly is my rock. I don't know where I'd be without him. I'm so so lucky. 

We signed all of the documents for our first house this weekend! Happy Anniversary to us! We get the keys on Thursday and officially move in a few weeks after some renovations. We are moving from the city to the 'burbs. It will be a change. For sure. I think the calm will bring us some peace, but it will be an adjustment. We are excited and, of course, a little scared to be homeowners and be entering into this new phase of adulthood. 

We also mailed our cheek swabs back to the genetics lab. Now we just play the waiting game while they create the probe based on our genetics. Fourteen long weeks. Waiting will be rough but we have so many things going on right now to distract us. 

My incredible brother just moved to Chicago this weekend to start his dream job. I'm so proud.  He is so deserving and talented and this is just the beginning for him. It makes me happy to see how happy he is. I can't wait to see where he goes. 

With all of this change and positivity, it's hard to feel sorry for myself. We have so much to be thankful for. No, it's not all sunshine and roses, but we are doing pretty darn well. My mom is adjusting to life without a car and, so far, enjoying exploring her town through public transportation. Simplifying her life (and her bills) has proven to be helpful. She has good days and bad. I'm proud of her. She is brave and her victories, however small, are still victories. 

Adjusting to life with a disease is a process. Although I am as healthy as I could be, HD will always be in my life. It's in my mom's life. It's in my life. It's a struggle to find the balance between happiness and denial. I have to keep reminding myself that life will never go back to how it was before. But it can be happy and positive and good. Disease doesn't mean that life is over. In fact, in some ways, it pushes me to be the person I was always meant to be. 


It Comes in Waves

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